Gone are the days of being fed, changed and put to bed at 6pm!!

Welcome! I am so happy you are here, and browsing my brand new website!

As a Disability Activist I want to help change the way the world sees people living with disability. Gone are the days where people with disabilities are fed, changed and put to bed at 6pm with little say in life’s decisions. Or so they should be....

Like other people in our community, we just want:

Independence 🧑🏾‍🦼🧑🏻‍🦽👩🏽‍🦯
Friends 👩🏼‍🤝‍👨🏽👬👩🏼‍🤝‍👨🏽👭🏻
Family 👨‍👩‍👦👨‍👩‍👦‍👦👩‍👩‍👦👨‍👨‍👦
Hobbies 👨🏼‍🍳👩🏾‍🌾🕵🏻‍♂️
To achieve goals 👩🏼‍🎓🧑🏾‍🎓👨🏻‍🎓
Meaningful employment 👩🏼‍💻👨🏽‍🎨👩🏼‍💼👨🏾‍💻
Love ❤️❤️
To choose how we live our life 👩🏻‍🦽🧑🏾‍🦼👨🏼‍🦯🧎🏻🚶🏼‍♀️👨🏿‍🦼

Imagine a life where someone else decides when you get out of bed, what you wear, where you sit, what you eat, who you speak to and when you go to bed.

Sounds cruel doesn’t it?

But for some people living with disabilities, its a reality. Even in 2020!

When I first had a care package implemented, my life was very much dull and boring.

My home care provider decided that I was to get up, showered, ‘toileted’ and dressed at 7am, and all this had to be completed by 8am. I was very rarely asked what I wanted for breakfast or what I wanted to wear, it was all decided for me.

I usually just stayed in bed, because I literally had nothing to get up for. Careers would come in at 11am to feed me lunch (30minutes), and 3.30pm for tea (30minutes). In those 30 minutes, I was toileted, a ready meal thrown in the microwave and given any prescribed medication. I was then showered, changed and put to bed at 6pm. I asked to change the time a few times, but according to the care company, they were the only time slots available.

I had no

Independence
Self Esteem
Self Worth
Friends
Employment
Hope for the future.

Its no wonder I quickly sunk in to depression. I was an adult, but had very little say in my life.

I have changed so much since then.

I had so much more to do in the world, so much more to see and to achieve. I had to fight for my right to a life, to independence, freedom to choose how I live my life.

I now live my life to the full, I laugh, cry and try very hard to achieve my dreams. But now I want to make some changes, because everyone living with a disability has a right to choose how they live their life.

Through my blog I aim to change the way people see disability.

I aim to challenge the way care is provided by care companies earning millions from institutionalised care packages.

The year is 2020, not 1950, its time we make a drastic change to how we provide ‘care’.

Pip

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